All of Us Data Sheds Light on Health of Young Cancer Survivors



Cancer is often associated with an aging population, but something is changing in the demographics of cancer survivors — they are younger. There are projected to be 85,980 new cases of cancer in individuals between ages 15 and 39, according to the National Cancer Institute. Decade trends show that this number has been rising an average of 0.3% each year.  Even though most young adults and teens with cancer are expected to survive for five years following their diagnosis, researchers are trying to understand why young survivors often face long-term health impacts, such as nerve pain and memory loss.   For example, a recent study – using All of Us Research Program data – found that four conditions that affect the brain or nerves were more common in young cancer survivors ...

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Latinos: Share Your Cancer Journey or Caregiver Experience 



Researchers at Texas Tech University are interested in learning more about you and your family caregiver's experience with advanced cancer.   The research team is seeking participation from people who are 18 or older, speak English, identify as Latino or non-Hispanic White, and have been diagnosed with advanced cancer (stages 3b-4).   Caregivers who want to participate must be 18 years or older, speak English, and identify as Latino or non-Hispanic White.  If you or your loved one meets these qualifications, you may be eligible to take part in this study, which consists of three different surveys.  These surveys will be spaced out and take 30 to 45 minutes to complete, and can be done online, by mail, or over the phone with the help of a research assistant.  The ...

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More Than Meets the Eye: How Surviving Colon Cancer Transformed Marielle Santos McLeod’s Advocacy Work



Marielle Santos McLeod thought she knew a lot about cancer care.  Years as a health professional had given her time to learn about cancer care and gain a closer look at the barriers Latinos face in getting equitable treatment.  That’s why, when the mother of four was diagnosed with colon cancer at age 36, she was shocked by just how little she really knew.  However, it was enduring the disease as a young Latina that guided her toward her life's purpose – serving as a patient advocate to uplift the voice of Latino cancer survivors.  “I love advocacy .... It's like one of the things that I'm convinced that I was put on this earth to do. I just had to get cancer to get to it first,” Santos McLeod said.  Spanish-Language Influence  Santos McLeod doesn’t believe ...

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First-Ever Cancer Patient Advocate Training Program Saves Seat at the Table for Latinos



Ahead of the 2024 Advancing the Science of Cancer in Latinos Conference, 15 Latina women from across the country came together, unified by a common thread — to become a research patient advocate. This gathering, on Feb. 20, 2024, marked the first in-person meeting of the Latino Cancer Patient Advocate Training Program, a new initiative to teach cancer survivors to become research patient advocates, who help others navigate the healthcare system and raise the Latino voice in research. Patient advocates are critical to the goal of reducing Latino cancer disparities, said Dr. Barbara Segarra-Vázquez of the University of Puerto Rico, co-leader of the new program. “You really have to have passion to become a patient advocate,” said Segarra-Vazquez. “It’s that desire to help ...

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The Devastating Cost of Cancer in Latinos



This year, over 2 million American will get a cancer diagnosis, including many Latinos. As one of the leading causes of death in Latinos in the U.S., one in five men and one in seven women who are Latino will die from the disease. Cancer also takes a heavy financial toll on patients, whose survival is dependent upon a variety of factors, including access to quality, often costly, healthcare treatments. Let’s explore the cost burden of cancer, and what to do about it. The Cost Burden of Cancer In 2018, patients and their families paid $5.6 billion out of pocket for cancer treatments, such as surgery, radiation, and chemotherapy drugs, according to the American Cancer Society (ACS). Americans spent a total of $183 billion on cancer-related healthcare in 2015 - an amount ...

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What Would Happen If More People Got Cancer Screenings?



Cancer screening can help catch cancer early when it is more treatable. But participation in screening is sporadic at best, especially among Latinos.  What would happen if more people got screened for cancer?  To find out, a team of U.S. and Canadian researchers used computer modeling to estimate the number of deaths that could be prevented, and the harms caused, if more people followed recommended cancer screening guidelines.  Let’s explore what they found and what it means for Latino cancer.  The Impact of More Screening: Potential Lives Saved  Cancer screenings can catch early cases of lung, colorectal, cervical, and breast cancers.  But only 13% of people eligible are up to date for lung cancer screening; 69% for colorectal cancer screening; 73% for cervical ...

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New Cancer Cases Projected to Surpass 2M Historical High



New cancer cases are projected to surpass 2 million in 2024 - a first in for the U.S., according to American Cancer Society’s Cancer Facts & Figures 2024 report.  The landmark projection amounts to 5,500 diagnoses a day.  The American Cancer Society attributes the rise in cases to a growing and aging population along with an increase in diagnoses of six common cancers – breast, prostate, endometrial, pancreatic, kidney, and melanoma.  In addition, the organization is projecting over 611,000 deaths from cancer in 2024, a .19% increase from 2023. That is more than 1,600 deaths each day!  While cancer is prevalent across people of all races, ethnicities, ages, genders, and backgrounds, it disproportionately continues to affect people of color, such as Latinos.  Cancer in ...

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DIY Testing Kits for HPV Could Help Reduce Cancer Disparities Among Latinas


DIY HPV testing

Latinas suffer a high burden of cervical cancer, which is often caused by the Human Papillomavirus (HPV). In fact, Latinas have the second-highest rate of dying from cervical cancer after Black women, according to the US Centers for Disease Control & Prevention (CDC). Cervical cancer screening – commonly referred to as a Pap smear – can help reduce this disease burden. However, Latinas and other women of color face numerous barriers to cervical cancer screening, such as lack of health insurance and fear of cervical exams, which can be uncomfortable and anxiety-inducing. Enter University of North Carolina researchers Jennifer S. Smith and Noel T. Brewer. The duo are part of the research team behind the My Body, My Test 3 clinical trial, which explored the ...

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Latino Cancer Patients Struggle with Unmet Needs, Face Worse Outcomes  



Cancer patients with unmet needs for support – in areas from finances to emotions – are more likely to experience worse clinical outcomes, according to a new study led by Dr. Frank Penedo of the Sylvester Comprehensive Cancer Center at the University of Miami.  Who are the cancer patients at highest risk for having unmet needs?  Latinos, Blacks, and people who experience anxiety, depression, pain, poor physical function, and low health-related quality-of-life scores.    "Our findings offer strong evidence that unmet supportive care needs are associated with unfavorable clinical outcomes, particularly higher risk for ED visits and hospitalizations," Dr. Penedo said, according to a news release.   Let’s dive into unmet needs and what they mean for Latino cancer ...

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