Posts tagged Redes En Accion
Latinos don’t know much about clinical trials, surveys show.
Clinical trials are research studies in which people help doctors find new prevention, screening, and treatment options. New treatments that look promising, and have already been tested extensively in the laboratory, are then tested with patients who volunteer to participate.
It’s especially important for Latinos to participate in research so that doctors can learn more about the types of cancer that affect our community and what treatments are most effective, says Dr. Amelie G. Ramirez, director and professor at the Institute for Health Promotion Research (IHPR) at the UT Health Science Center at San Antonio, the team behind SaludToday.
For those who speak Spanish, listen to Dr. Ramirez talk about the importance of clinical trials for Latinos:
Also be sure to check out these informative videos in English and Spanish about the importance of Latino participation in clinical trials.
These videos were produced by the IHPR through its national Latino cancer research network, Redes En Acción, which is funded by the National Cancer Institute (NCI).
You’re invited to join a free webinar March 12, 2013, to learn more about how systems and neighborhoods influence Latino cancer.
The webinar, hosted by researchers of Redes En Acción, a National Cancer Institute project led by the Institute for Health Promotion Research (IHPR) at the UT Health Science Center at San Antonio, is at 11 a.m. CST (9 a.m. PST) on March 12, 2013, will explore two global factors that can help understand mechanisms behind health disparities: 1) systems of care defining access in a broad way and how these may affect disadvantaged patients; and 2) research on neighborhood influences on health disparities, with a focus on different approaches to measure “neighborhood.”
The webinar will last one hour.
You are invited to join a webinar to learn more about how certain behaviors impact Latino cancer incidence, causes, and effects.
The webinar, at 11 a.m. CST (9 a.m. PST) on Tuesday, Jan. 15, 2013, will explore the interaction of race/ethnicity, social class, acculturation, and English language fluency, and how these social constructs may interact with genetic variation and the social definition of race and ethnicity in determining cancer rates.
Behavioral factors, such as tobacco use, physical activity, alcohol use and screening behavior will be discussed.
The webinar is hosted by researchers of Redes En Acción, a national Latino cancer research network funded by the National Cancer Institute (NCI) and directed by the Institute for Health Promotion Research (IHPR) at The UT Health Science Center at San Antonio, the team behind SaludToday.
A unique new five-part video series explores the nuances of cancer in Latino populations.
- Part 1: Demographics
- Part 2: Disparities
- Part 3: Cultural Values
- Part 4: Physical, Emotional Concerns
- Part 5: Supporting the Needs
The videos, produced by the Nurse Oncology Education Program (NOEP), feature several researchers at the Institute for Health Promotion Research (IHPR) at the UT Health Science Center at San Antonio, including IHPR Director/Professor Dr. Amelie G. Ramirez, Research Instructor Sanrda San Miguel, and Patient Navigation/Promotora Guadalupe Cornejo.
The trio also play large roles in the IHPR’s Latino cancer research network, Redes En Acción, funded by the National Cancer Institute.
Here are Parts 1-5:
Extra support for patients, called “patient navigation,” can lead to faster diagnosis for Latinas after an abnormal mammogram result, according to a new study by the Institute for Health Promotion Research (IHPR), part of the School of Medicine at The University of Texas Health Science Center at San Antonio.
The study, published this week by the journal Cancer, also suggests that patient navigation should be carefully targeted to have the greatest impact on eventual health outcomes.
IHPR researchers worked with partners in the federally funded Redes En Acción: The National Latino Cancer Network to examine the experiences of 425 Latinas in six cities nationwide. Each woman had received an abnormal result in initial breast cancer screening and was referred for further evaluation.
About half of the women received help from trained patient navigators, who provided culturally sensitive support and help overcoming barriers related to transportation, child care, insurance coverage, language and more. The rest of the patients did not receive patient navigation.
The study’s patient navigators, all Latinas themselves, were high school graduates between the ages of 25 and 47, and were trained to coordinate care according to the same patient navigation model.
For patients who received navigation services, the time between an abnormality being found and eventual diagnosis – whether positive or negative for cancer – was significantly shortened.
Those who worked with patient navigators were diagnosed in an average of 32.5 days, compared with 44.6 days for those who did not receive patient navigation.
“This study demonstrates that patient navigation can influence the time to cancer diagnosis for Latinas,” said IHPR Director Dr. Amelie G. Ramirez and study author.
More specifically, researchers found the greatest benefit for women whose abnormalities were categorized upon discovery as “probably benign” – or BI-RADS-3 on the American College of Radiology’s Breast Imaging-Reporting and Data System.
The likelihood of cancer in a woman with a BI-RADS-3 screening result is about 2-4%.
Health care providers typically instruct these women to return for another screening within six months; however, delays and anxiety occur, appointments are missed and Latinas may skip subsequent screenings altogether, potentially setting the stage for confirmatory diagnoses at more advanced stages of cancer with lower survival probability.
In this study, on average, women with “probably benign” abnormalities received a diagnosis more than 40 days sooner if they worked with a patient navigator.
“For women with more ambiguous screening results, a faster diagnosis through patient navigation relieves them of the burden of worrying about their health,” Dr. Ramirez said. “We can target Latinas who are falling through cracks and prevent situations where cancer advances to worse stages because Latinas aren’t following up an ambiguous screening result.”
Accessing quality health care and dealing with health care systems can be a challenging process. This is especially true for Latinos who experience several barriers—from language to culture—in receiving cancer treatment.
Fortunately, SaludToday’s social media outlets are gaining momentum, and important resources like the Redes En Acción: Patient Navigation Training Manual are providing organizations and individuals alike with a roadmap for reducing barriers to accessing health care.
IHPR earned a “silver” award for its free Patient Navigation Training Manual and a “bronze” award for its SaludToday Twitter feed from the Health Information Resource Center, which gives awards twice annually for online health information.
The manual offers providers with tools to help Latinos overcome barriers to accessing health care. It is divided into three sections which explain what patient navigation is, if it is right for an organization, and how to build and implement patient navigation.
Find the manual here.
View the 2012 Web Health Award winners list here.
Marynieves Diaz-Mendez has been selected as the 2011 LIVESTRONG Promotora of the Year.
Diaz-Mendez, a trained physician in her native Cuba, is a promotora—or trained community health educator—who has been working with Redes En Acción in the California Bay Area to increase Latino cancer survivors’ access to and knowledge of LIVESTRONG national navigation services.
Redes En Acción is a national Latino cancer research network led by the Institute for Health Promotion Research at The UT Health Science Center at San Antonio, the team behind SaludToday.
LIVESTRONG, founded by cyclist and cancer survivor Lance Armstrong, connects cancer patients and survivors to the support they need, leverages funding and resources to spur innovation and engages communities and leaders to drive social change.
In her promotora role, Diaz-Mendez has shared a wealth of knowledge and information with her survivor population by educating them about the importance of early screening, self-advocacy and education. In addition, she has established valuable connections and successfully participated in project media campaign efforts.
Miaz-Mendez also serves as staff research associate and outreach worker for the Northwest Regional Network Center of Redes En Acción.
Watch Dr. Amelie Ramirez, director of the Institute for Health Promotion Research at the UT Health Science Center at San Antonio, talk about why Latinos should consider participating in a cancer clinical trial.
The video is in Spanish:
Learn more about Latino cancer here.
You can also join Dr. Ramirez’ Redes En Acción network, a National Cancer Institute initiative to combat cancer among Latinos.
A community health worker (CHW) helps patients—in San Antonio, that typically means Latino patients—navigate the complex world of cancer care, according to a San Antonio Express-News article about CHWs.
The article focuses on Guadalupe Cornejo, a CHW at the Institute for Health Promotion Research at The UT Health Science Center at San Antonio, the team behind SaludToday. Cornejo is partialy supported through the IHPR’s Latino cancer research network, Redes En Acción, via a partnership with LIVESTRONG.
Cornejo’s job includes answering questions, helping patients make appointments and apply for services and, when necessary, acting as a liaison between patients and the medical system.
“Research has shown that this population is more likely to fall through the cracks when it comes to cancer care,” says Sandra San Miguel de Majors, a researcher-instructor at the University of Texas Health Science Center and program coordinator.
Preliminary figures show that, during the first eight months of the Redes en Acción/Livestrong partnership, the program’s CHWs served 920 patients.
Read about Guadalupe and the Latino patients she helps here.
A “promotora“—or trained community health educator—from the Institute for Health Promotion Research’s Latino cancer research network has been named “Promotora of the Year” by Spanish-language publication El Latino.
Alma Sandoval is one of six network promotoras from the IHPR’s network, Redes En Acción, who have been working at regional sites across the nation to increase Latino cancer survivors’ access to LIVESTRONG’s national navigation services. Redes En Acción is directed by IHPR director Dr. Amelie Ramirez. The promotora project is coordinated by IHPR researcher Sandra San Miguel.
Sandoval works for the San Ysidro Health Center in San Diego, a Redes En Acción regional site.
The IHPR, based at the UT Health Science Center at San Antonio, is the team behind SaludToday.