Posts tagged clinical trials
A significant percentage of African-Americans (61%), Hispanics (57%) and Asians (50%) say it’s very important to participate as a volunteer in a clinical trial to improve the health of others, compared to 47% of non-Hispanic whites, according to a new national public opinion poll by Research!America.
These findings are tempered by the reality that participation remains disturbingly low among all groups.
When asked if they or someone in their family has ever participated in a clinical trial, only 17% of Hispanics, 15% of African-Americans, 15% of non-Hispanic whites and 11% of Asians said yes.
Only about a quarter of African-Americans, Hispanics and Asians say they have heard about clinical trials from their doctor or other health care provider.
Many respondents believe health care providers should play a major role in raising awareness of clinical trials. In fact, 38% of Hispanics, 36% of Asians and 33% of African-Americans said providers have the greatest responsibility in educating the public about clinical trials, as did 42% of non-Hispanic whites.
A strong majority—75% of Hispanics, 72% of African-Americans, 71% of non-Hispanic whites and 65% of Asians—say they would likely participate in a clinical trial if recommended by a doctor.
“The poll reveals a willingness among minorities to participate in clinical trials to improve quality of health care, but enrollment remains stubbornly low,” said Mary Woolley, president and CEO of Research!America. “We must continue to strive toward reaching all segments of the population to boost the level of participation in order to further medical progress.”
Latinos don’t know much about clinical trials, surveys show.
Clinical trials are research studies in which people help doctors find new prevention, screening, and treatment options. New treatments that look promising, and have already been tested extensively in the laboratory, are then tested with patients who volunteer to participate.
It’s especially important for Latinos to participate in research so that doctors can learn more about the types of cancer that affect our community and what treatments are most effective, says Dr. Amelie G. Ramirez, director and professor at the Institute for Health Promotion Research (IHPR) at the UT Health Science Center at San Antonio, the team behind SaludToday.
For those who speak Spanish, listen to Dr. Ramirez talk about the importance of clinical trials for Latinos:
Also be sure to check out these informative videos in English and Spanish about the importance of Latino participation in clinical trials.
These videos were produced by the IHPR through its national Latino cancer research network, Redes En Acción, which is funded by the National Cancer Institute (NCI).
Find the latest in Latino health—from fighting Latino liver cancer to innovative ways to improve life for Latino cancer survivors—in the new E-newsletter from the Institute for Health Promotion Research (IHPR) at The University of Texas Health Science Center at San Antonio.
The IHPR E-newsletter has these stories:
- Story and Video: Study Links Diabetes, Obesity to Liver Cancer in Latinos (Pg 1)
- Story: How a Professional Abuela Spawned a Health Career (Pg 2)
- Story: Clinical Trials & You (Pg 2)
- Story: Join Study Motivating Cancer Survivors to Get Fit (Pg 3)
- Story and Video: Closing Health Gaps for Latino Cancer Survivors (Pg 4)
- Videos: Health Novelas, Stories of Latino Diabetics, & More (Pg 10)
The E-newsletter is jam-packed with even more info on the latest local and national health disparities-related news, resources and events.
Visit us here.
A new National Institutes of Health website, NIH Clinical Research Trials and You, is designed to help people learn about clinical trials and how they can participate.
The resource, offered in English and Spanish, answers basic questions such as What are clinical trials and why do people participate? and What do I need to know if I am thinking about participating?
In addition, the website offers volunteer stories, researcher stories and educational resources.
You can also get help finding a clinical trial.
The Leukemia & Lymphoma Society (LLS) has launched a new website with increased access to resources and materials in Spanish.
Free education materials in English and Spanish can be read and downloaded or ordered from the website. This includes the easy-to-read, bilingual resource called, Knowing All Your Treatment Options/Conozca todas sus opciones de tratamiento. This booklet guides patients to discuss all treatment options with their doctors and explains clinical trials and informed consent in basic language.
Also on the website is information about financial programs, links to LLS’ new and archived telephone/web education programs, LLS national and chapter support services and printable question guides about treatment and clinical trials that patients can take with them to the doctor.
You can find the new website at www.LLS.org/espanol.
The Leukemia & Lymphoma Society’s new bilingual booklet, Knowing All Your Treatment Options/Conozca Todas Sus Opciones de Tratamiento, aims to help patients understand clinical trials as one of the treatment choices they may want to consider.
There is also a Healthcare Question Guide inside the back cover of the booklet for patients and family members to take with them to their doctor appointments.
To access this booklet and others on the Leukemia & Lymphoma Society’s Web site, please visit www.LLS.org/freematerials, or you can order hard copies of the booklet by calling 1-800-955-4572 between 9 a.m. and 6 p.m. EST. Information specialists can answer general questions about blood cancers and help patients form additional questions to ask their doctor specific to their diagnosis.
Here are some ways you can get involved in the fight against cancer:
Join Redes En Acción
You’re invited to join Redes En Acción: The National Latino Cancer Research Network and become part of a nationwide effort to fight cancer among Latinos. Redes, which is funded by the National Cancer Institute and directed by Dr. Amelie G. Ramirez of SaludToday and the Institute of Health Promotion Research at the UT Health Science Center at San Antonio, has spent 10 years reducing Latino cancer. Redes has generated more than $200 million in funding for cancer research, trained more than 200 students and professionals and conducted more than 2,000 community education events and developed bilingual educational materials.
Join a Cancer Clinical Trial
The National Cancer Institute (NCI) has a database of available clinical trials across the U.S. For help finding a clinical trial, you also can call the NCI at 1-800-4-CANCER. Another phone resource for help finding clinical trials is the American Cancer Society’s help line at 1-800-303-5691. The ACS line is open from 8:30 a.m. to 8:30 p.m. ET Monday to Friday. If you live in South Texas, the Cancer Therapy & Research Center in San Antonio, Texas, has information about local clinical trials at 210-450-5798.
Cancer Disparities Research Opportunities
The American Cancer Society announces new opportunities for partnering organizations to become involved in research focused on reducing cancer disparities for population groups disproportionately affected by cancer burdens. The Cancer Control and Prevention Research Program of the Extramural Research and Training Grants Department is calling for applications in psychosocial, behavioral, health policy and health services research that addresses health disparities. For information, contact Ronit Elk, Program Director (Ronit.Elk@cancer.org) or Kim Smith, Program Coordinator (Kim.A.Smith@cancer.org).
Many decry the fact that only 3 to 5 percent of adults with cancer in the U.S. join clinical trials, but a deeper challenge emerges when you put faces to these numbers. Close to 90 percent of those who do enroll in trials are white, and only 5.6 percent are Latino.
Read here about what the National Cancer Institute (NCI) is doing to increase the enrollment of minority and underserved patients in clinical trials.
Also read more about the effort by Redes En Acción, the Latino cancer research network led by the Institute for Health Promotion Research at the UT Health Science Center at San Antonio, the team behind SaludToday, to use patient navigation to boost pediatric cancer clinical trial recruitment in South Texas.
Redes, working closely to outreach to and educate the Latino community and assisted by a trained, bilingual patient navigator, Cynthia Wittenburg, increased by 48 percent the number of Latino children accrued to pediatric hematology/oncology clinical trials in a South Texas county with high rates of childhood leukemia.
“This was a most impressive result,” said Redes En Acción Director Dr. Amelie Ramirez, “and speaks to the importance of community involvement combined with the promise of navigation to help increase enrollment among some of our most vulnerable populations.”
Many people would consider participating in research but do not know how to find studies that are right for them. At the same time, vital studies end early because researchers cannot find enough people to participate. This can delay new health treatments from becoming available to patients.
A new solution is www.ResearchMatch.org, where people can be matched with research studies.
ResearchMatch is a non-profit developed by major universities across the nation that brings together researchers and people who are willing to learn more about research studies via a secure and convenient online web portal.
Volunteers of any age, race, ethnicity or health status are invited to join. Go here for details.